Assisting to build happy homes
Never think of yourself as alone. Whether it is getting the medical prognosis or requiring monetary help, we are always here to provide you with the required assistance.
Recently detected
1. Diagnostic Analysis
Breathe deeply and calm yourself. Get a thorough clinical review from your doctor. Document the particular LSD kind such as the Gaucher Type 1 for example.
Read about the disease2. Consult a veteran
If you are seeking specialist for LSDs, then regular child specialists are not recommended as they may not have the required knowledge and experience. A clinical geneticist or a metabolic health expert is required.
Search our Medical Directory3. Find and be part of like minded and similar communities
It is vital for a LSD patient to reach out and touch base with other patients and their families in a similar situation. Reaching out and communicating with each other boosts your mental confidence as well as provides pragmatic guidelines.
Join our WhatsApp GroupMonetary Assistance
National Policy for Rare Diseases (NPRD)
The Indian Government offers a lumpsum amount of rupees 50 lakhs as curative and treatment procedures for uncommon disorders at COEs or registered and prominent Centers of Excellence.
Crowdfunding Platforms
There are many expenses that do fit into the schemes of the government. In such cases, there are validated crowdfunding strategies may help to contribute to the treatment for the enzyme transplant procedures.
Do you need help with your applications?
Our participants are always glad to help and guide you through the application process for the NPRD by checking and sorting out all your official documents in order. Contact us.