The story that we tell
The path of affection, loss and eternal hope. We aim to transform our own deep tragedy into a hopeful and healing campaign for children afflicted with lesser- known diseases.
Remembering Taraasha
The Taraasha Foundation has been launched in fond memory of Taraasha Bhargava. Our aim is to help, strengthen and provide empathetic assurance to patients and their families, who have been impacted by LSD or Lysosomal Storage Disorders as well as other unfamiliar hereditary diseases in India.
The Foundation strives to achieve its noble objectives on a four-fold mission. We offer patient- oriented help, connect parents and caregivers, provide recognition and knowledge about rare diseases and advocate for the appropriately timed diagnosis and treatment facilities.
The Foundation aims at enhancing the life conditions of the patients, strengthening families and fostering community bonds for combatting the rare diseases in India.
Our goals
Patient-Centric Support
- Offers sensible and sympathetic guidelines, effective counselling sessions and sound mental comfort to help the patients and their families to combat LSDS.
- Enabling opportunities to suitable alternatives, treatment procedures and medical gateways.
Parent & Family Connect
- Establishing a portal on which family members, parents, caretakers and those affected can get in touch, exchange their mutual experiences and learn from one another.
- Forging and empowering ties and connections among the community members. No family need to feel alone in this journey.
Education & Awareness
- Helping more and more people to know and have a clear understanding of LSD.
- The people include the general individuals, health care experts and policymakers.
- Educational assets and aids are offered to ensure initial identification and appropriately timed treatments
Advocacy & Collaboration
- Combining forces with national and international institutions to bring forth the most enhanced kind of practises, research work and recovery techniques to India.
- Advocating for enhanced pathways to therapies, government aid and coverage of the more uncommon disorders in the healthcare policies.
Our Vision: Bridging the Gap in Rare Disease Care
The path travelled by any family while combatting a rare genetic disorder is mostly a solitary one. It is marked by a complete dearth of understanding and awareness along with specialized medical infrastructure. Taraasha Foundation was created from a moving personal tragedy but its mission diversifies to each corner of India where a child is awaiting treatment. Our vision remains to make a smooth environment in order to ensure that the time lapse between the first symptom and treatment initiation is reduced effectively through timely diagnosis and global screening.
We aim at opting for strategic advocacy to boose awareness and understanding. We believe that by textualizing and recording patient stories and their medical results, it will be possible for us to impact the administrators to highlight the significance of metabolic health in the national healthcare agenda.
It remains our sole commitment to collaborate with leading hospitals, researchers and global-health institutions to bring ERTS or the recent Enzyme Replacement Therapies and gene-centred medical breakthroughs to India. By promoting common knowledge through shared communities, we encourage parents to fight for their own children’s health.
Taraasha Foundation is a gateway for transformation, incentive for insurance reforms and public funding. It is to ascertain that not a single child is deprived of treatment because of monetary lack. Our lasting goal is for a world which does not view rare as neglected. We unite for a peaceful world which provides every life with the love and respect that it deserves.
A Note from the Founder
"Through this foundation, we aim to transform grief into hope and ensure that every patient and family impacted by LSDs globally has a voice, a support system, and a chance at a better future."— Karan BhargavaFather of Taraasha Bhargava