Support for Families

You are not alone. Whether you have just received a diagnosis or are seeking financial aid, we are here to guide you through every step.

Newly Diagnosed?

Take a deep breath. Ask your doctor for a detailed medical report. Write down the specific type of LSD (e.g., Gaucher Type 1).

General pediatricians may not have expertise in LSDs. You need a Medical Geneticist or a Metabolic Specialist.

Connecting with other families is efficient for mental support and practical advice.

The Government of India provides financial support of up to ₹50 Lakhs for treatment of rare diseases at notified Centers of Excellence (COEs).

For costs not covered by government schemes, verified crowdfunding campaigns can help raise funds for enzyme replacement therapies.

Our volunteers can help you verify your documents for NPRD applications. Contact us.