Our Story
A journey of love, loss, and unwavering hope. We are turning personal grief into a powerful movement for children with rare diseases.
Remembering Taraasha
The Taraasha Foundation has been established in loving memory of Taraasha Bhargava, to support, empower, and bring hope to patients and families affected by Lysosomal Storage Disorders (LSDs) and other rare genetic conditions in India.
The Foundation is committed to providing patient-centric support, building caregiver and parent networks, creating awareness and education about rare diseases, and advocating for timely diagnosis and treatment access.
The Foundation is dedicated to improving the quality of life of patients, empowering families, and strengthening community support systems for rare disease care in India.
Our Purpose
Patient-Centric Support
- Providing guidance, counseling, and emotional support to patients living with LSDs and their families.
- Facilitating access to resources, care options, and treatment pathways.
Parent & Family Connect
- Creating a platform where parents and caregivers can connect, share experiences, and learn from one another.
- Strengthening community bonds so that no family feels alone in their journey.
Education & Awareness
- Spreading awareness about LSDs among the general public, healthcare professionals, and policymakers.
- Providing educational resources that help in early diagnosis and timely interventions.
Advocacy & Collaboration
- Working with national and international organizations to bring best practices, research, and treatments to India.
- Advocating for better access to therapies, government support, and inclusion of rare diseases in healthcare policies.
A Note from the Founder
"Through this foundation, we aim to transform grief into hope and ensure that every patient and family impacted by LSDs globally has a voice, a support system, and a chance at a better future."— Karan BhargavaFather of Taraasha Bhargava